September 21, 2017
Learning to adapt to a new normal can be difficult, but there is life beyond your PH diagnosis. In this patient-led webinar, panelists discuss the challenges of navigating work and travel with PH. Panelists offer insights, tips, and strategies they've learned from personal experience traveling and working after a PH diagnosis. Being able to prepare for interviews, handle work schedules, and arrange for travel are new hurdles for newly diagnosed PH patients. But they can be managed with preparedness skills and the inside scoop!
August 31, 2017
In the last webinar of the Newly Diagnosed series, Dr. Wassim Fares of Yale University School of Medicine discusses the benefits to participating in registries and what they tell doctors and researchers about PH. Discussion will also talk through the ins and outs of clinical trials, such as what being in a placebo group involves, general stages of a clinical trial and the types of clinical trials available. Dr. Fares talks about what these trials suggest for future treatments in PH.
July 31, 2017
During this webinar, Amy Kimber, RN, APNP, from Froedtert and the Medical College of Wisconsin and Dr. Ioana Preston from Tufts University School of Medicine addressed ways that a pulmonary hypertension (PH) diagnosis can affect a woman’s personal life, identity relationships with others and how they can navigate these changes. Everyone experiences uncertainty and changes with their body image as well as emotional and sexual relationships. Adding a chronic medical illness can be challenging, so women should know that they can take control and be empowered in their lives. Discussion covered how you can better recognize thoughts and feelings about these changes and how to become comfortable in your skin with PH.
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