Pediatrics

e-Learning Guides

  • e-Learning Guide - Parenting a Child with PH

    December 1, 2014

    Having a child with pulmonary hypertension (PH) presents some unique challenges. This e-learning guide is filled with helpful information and resources to ensure that your child receives the best care possible.

  • e-Learning Guide - A Caregiver's Guide to PH

    September 8, 2014

    Providing care for a patient with pulmonary hypertension (PH) can present a number of unique challenges. This e-Learning Guide provides helpful tips to help caregivers take the best care of themselves while taking care of their loved ones.

Recordings

  • Experienced Insights into Caring for a Child with PH

    March 18, 2015

    Presented by the Nora Thelma Boström Foundation in partnership with PHA, this webinar covers the unique challenges in raising an infant or toddler with pulmonary hypertension. Claire McCormack and Thomas Boström offer detailed advice on a variety of topics, from managing medication to navigating bath time. Anne Davis, RN, of Seattle Children’s Hospital, participates as a medical resource.

  • Psychosocial Support for PH Kids and Teens

    Psychosocial Support for PH Kids and Teens

    October 2, 2014

    Dr. Holly Gooding of Boston Children's Hospital addresses questions in this webinar for parents of pediatric pulmonary hypertension (PH) patients.

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    Ask a Pediatrician - For Parents of 12-18 Year-Old Patients (2014)

    June 22, 2014

    In this session recording from PHA's Conference, presenters will discuss the special needs of 12-18 year olds with pulmonary hypertension (PH).

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    Surgical Problems for Children with PH (2014)

    June 21, 2014

    In this session recording from PHAs Conference, presenters will highlight various issues around anesthetics and processes when pediatric pulmonary hypertension (PH) undergo surgical procedures.

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    Helping Your Family and Your Young PH Patient Cope (2014)

    June 20, 2014

    Living with a PH diagnosis as a child can be challenging. Parents will discuss coping methods for kids of all ages. Learn how you can empower your child to live positively with PH in this session recording from PHA's 2014 Conference.

  • Talking To Your Children About PH

    November 13, 2013

    Every child is unique. Join Delphine Yung, MD, and Anne Davis, RN, to discuss different ways of explaining PH to children of all ages and learning styles.

  • Preparing for the School Year with PH

    May 20, 2013

    Join Education Specialist Jeanne Kane as she discusses the effects of chronic illness on children’s school performance and explains how to secure education accommodations to make school a safe and rewarding experience for your child. Learn the ins and outs of 504 plans and IEPs and hear from real families overcoming their own unique challenges with school and PH.

  • School and PH

    June 22, 2012

    Balancing your child’s education with their health needs can mean facing challenging decisions. Join us for this discussion on schooling to learn how other parents approach these issues at different developmental stages

  • Traveling with my PH Child

    March 15, 2012

    Whether by plane, car, bus or train, traveling with pulmonary hypertension (PH) can be tricky for families. This webinar will give you the tips you need for a planning smooth vacations - whether it’s across the country or around town!

  • Explaining PH to Your Child: Developmentally Appropriate Approaches

    October 20, 2011

    Every child is unique. Michelle and Jennifer, PH nurses from the Children’s Hospital Colorado, discuss different ways of explaining PH to children of all ages and learning styles. This webinar is part of PHA's Parents Telephone Support Group.

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