• Experienced Insights into Caring for a Child with PH

    March 18, 2015

    Presented by the Nora Thelma Boström Foundation in partnership with PHA, this webinar covers the unique challenges in raising an infant or toddler with pulmonary hypertension. Claire McCormack and Thomas Boström offer detailed advice on a variety of topics, from managing medication to navigating bath time. Anne Davis, RN, of Seattle Children’s Hospital, participates as a medical resource.

  • Preparing for the School Year with PH

    May 20, 2013

    Join Education Specialist Jeanne Kane as she discusses the effects of chronic illness on children’s school performance and explains how to secure education accommodations to make school a safe and rewarding experience for your child. Learn the ins and outs of 504 plans and IEPs and hear from real families overcoming their own unique challenges with school and PH.

  • School and PH

    June 22, 2012

    Balancing your child’s education with their health needs can mean facing challenging decisions. Join us for this discussion on schooling to learn how other parents approach these issues at different developmental stages

  • Traveling with my PH Child

    March 15, 2012

    Whether by plane, car, bus or train, traveling with pulmonary hypertension (PH) can be tricky for families. This webinar will give you the tips you need for a planning smooth vacations - whether it’s across the country or around town!

  • Explaining PH to Your Child: Developmentally Appropriate Approaches

    October 20, 2011

    Every child is unique. Michelle and Jennifer, PH nurses from the Children’s Hospital Colorado, discuss different ways of explaining PH to children of all ages and learning styles. This webinar is part of PHA's Parents Telephone Support Group.

  • Building Community Awareness About Your Child's Medical Condition

    March 17, 2011

    Listen and learn about ways to use media and events to raise awareness about your child’s medical condition!

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