Caregiver Support

e-Learning Guides

  • e-Learning Guide - A Caregiver's Guide to PH

    September 8, 2014

    Providing care for a patient with pulmonary hypertension (PH) can present a number of unique challenges. This e-Learning Guide provides helpful tips to help caregivers take the best care of themselves while taking care of their loved ones.


  • Coping with PH and the Role of Palliative Care

    April 6, 2017

    Day-to-day life with chronic disease is a challenge to patients, caregivers and their families. The goal of this session is to provide tools for coping with the "good days" as well as the "bad days," and provide some new options for improving quality of life.

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    Financial and Estate Planning with PH

    February 15, 2016

    In this webinar, presenter Martin M. Shenkman, CPA, MBA, PFS, AEP (distinguished), JD, will cover financial and estate planning considerations for PH patients and caregivers. Martin will discuss his 12 steps to guide you towards the goal of legal and financial security. Focus will be placed on steps to maintain financial wellness for one’s self and family in the face of medical illness.

  • Living Well with Lung Disease

    January 20, 2016

    A PH diagnosis affects patients as well as their family members and those around them. Join PHA Classroom and Kristen Holm, PhD, for a discussion of the ways that lung disease affects patients and families. Coping skills, social support and emotional well-being for all affected by PH will be discussed.

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    One Day at a Time.. Coping with PAH and How Palliative Care Can Help (2014)

    June 22, 2014

    In this session recording from PHA's Conference, presenters will discuss day-to-day life with the chronic disease pulmonary hypertension (PH) and how it is a challenge to patients, caregivers and their families.

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    Coping with Chronic Illness: Let's Make the Journey Together! (2014)

    June 21, 2014

    This session from PHA's 2014 Conference will focus on coping with chronic illness over the long term for caregivers and patients. Caregivers can be family members, friends, or healthcare providers.

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    Care for the Adult PH Caregiver (2014)

    June 21, 2014

    In this session recording from PHA's Conference, presenters will be especially targeted towards family members of adult pulmonary hypertension (PH) patients, will provide an overview of what caregivers should know about PH and how they can manage multiple priorities while caring for their own needs.

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    PH is Relative - Coping as a Family Member Affected by PH (2014)

    June 20, 2014

    PH affects everyone in the family. Listen to this session recording from PHA's 2014 Conference to this session for tips on keeping your family relationships strong - whether you're focusing on your marriage, your relationship with an adult sibling or parent who has PH, or you want to help your children cope with their parent's diagnosis.

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    The Caregiver's Guide to Surviving PH (2014)

    June 20, 2014

    With medications, errands, pharmacy calls, meals and everything in between, who can keep up? This session will focus on the pulmonary hypertension caregiver. Hear from experienced caregivers about juggling all the balls in the air while finding ways to manage the stress of caregiving, and share your own thoughts about surviving as a caregiver.

  • PH Caregiving 101

    July 24, 2013

    Your family member or friend has just been diagnosed with pulmonary hypertension (PH). You want to help them, and you’re trying to find your role among all the new medical jargon, routines and expectations. Join us for this webinar to learn what “caregiving” means and get tips for being an effective caregiver.

  • Advocating in Everyday Situations

    March 20, 2013

    As a caregiver, you may find yourself in the position of advocating for your loved one in many everyday situations - at the supermarket, the doctor's office, with friends, and more. This webinar will discuss how to approach these situations, how to best support your loved one in advocating for themselves when appropriate, and what to do when you just can’t get the message through.

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