Coping with PH

Videos

  • Embracing holistic care: Supportive care and symptom management

    February 22, 2018

    Managing appointments and medications for PH can be strenuous and complicated for both the patient and their care team. Coordination of care, time restraints and not knowing how to best communicate concerns can make it difficult for patients to express their concerns and ask for support with emotional distress and/or symptom management. In this webinar, Jacob Strand, M.D., Mayo Clinic, defines and discusses supportive care, the myths and misconceptions of palliative care and delve into how this care can benefit PH patients, their caregivers and the PH care team.

  • Health care planning: Conversations, decisions and directives

    February 22, 2018

    Learn the essentials of health care planning, advance directives, and the three key questions at the heart of health decisions planning with Charles Sabatino, Director, American Bar Association’s Commission on Law and Aging. Recognize five myths of advance care planning that get in the way and discover the free resources that help you and your family get the process going. Being prepared with needed documents for any health emergency ensures that you will have a trusted person of your choice empowered to make health decisions for you if you are unable. It is not rocket science, but it takes a little initiative, and it is essential for all adults age 18 to 118.

  • Coping with Chronic Illness

    April 6, 2017

    Caregivers and patients may experience difficulty coping, compassion fatigue, burnout and survivor's guilt. Long term exposure to the challenges and stress of providing care and/or living with a chronic illness can lead to physical and emotional symptoms. Strategies to identify and address these issues will be discussed.

  • Coping with PH and the Role of Palliative Care

    April 6, 2017

    Day-to-day life with chronic disease is a challenge to patients, caregivers and their families. The goal of this session is to provide tools for coping with the "good days" as well as the "bad days," and provide some new options for improving quality of life.

  • Men with PH

    April 6, 2017

    During this session, panelists will facilitate a discussion about the ways that men experience living with PH, and the ways that PH can impact one's personal life.

  • PH Associated with Another Condition- Coping with a Second Illness

    January 20, 2017

    As treatments for PH allow patients to enjoy a longer life, patients with PH are then susceptible to the problems of 'regular' people as they age. Explore problems like diabetes, chronic kidney disease, and coronary artery disease as panelists answer questions from the audience.

  • shenkman

    Financial and Estate Planning with PH

    February 15, 2016

    In this webinar, presenter Martin M. Shenkman, CPA, MBA, PFS, AEP (distinguished), JD, will cover financial and estate planning considerations for PH patients and caregivers. Martin will discuss his 12 steps to guide you towards the goal of legal and financial security. Focus will be placed on steps to maintain financial wellness for one’s self and family in the face of medical illness.

  • Living Well with Lung Disease

    January 20, 2016

    A PH diagnosis affects patients as well as their family members and those around them. Join PHA Classroom and Kristen Holm, PhD, for a discussion of the ways that lung disease affects patients and families. Coping skills, social support and emotional well-being for all affected by PH will be discussed.

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