Everyday Living

Videos

  • shenkman

    Financial and Estate Planning with PH

    February 15, 2016

    In this webinar, presenter Martin M. Shenkman, CPA, MBA, PFS, AEP (distinguished), JD, will cover financial and estate planning considerations for PH patients and caregivers. Martin will discuss his 12 steps to guide you towards the goal of legal and financial security. Focus will be placed on steps to maintain financial wellness for one’s self and family in the face of medical illness.

  • Living Well with Lung Disease

    January 20, 2016

    A PH diagnosis affects patients as well as their family members and those around them. Join PHA Classroom and Kristen Holm, PhD, for a discussion of the ways that lung disease affects patients and families. Coping skills, social support and emotional well-being for all affected by PH will be discussed.

  • Personal Foundation and You: Learning to Invest in Your Life and Self-Care

    July 29, 2015

    Elisa Lipnick, a professional life coach and lupus associated-PAH patient, discusses the role of establishing a strong personal foundation for yourself. Elisa shares several tips and tools to build your personal foundation, and explains how doing so can help anyone living with PH.

  • Applying for Disability: The When, Why and How

    June 17, 2015

    Having increasing difficulty keeping up with job demands? Already forced to quit work because of your illness? Consider applying for Social Security Administration (SSA) disability benefits. Not sure where to start? In this webinar recording, Caring Voice Coalition (CVC) Senior Patient Advocate, Lauren Patrizio, discusses how to best prepare (financially, emotionally, and medically) for filing, what to expect from the application process and how CVC can help.

  • PH Patients Should Always Be Prepared – Considerations for Travel and Emergent Situations

    May 14, 2015

    This webinar will empower PH patients and caregivers with practical skills necessary for successful travel (regional; national and international). Conversation covers preparing for travel and emergent situations with oxygen, infusion pumps, and loss of medications. Webinar participants will be able to develop a personal medical emergency plan and gain an understanding of patient/caregiver preparation responsibilities as well as their healthcare team’s role.

  • Parenting with PH

    February 10, 2015

    Under the best circumstances, parenting can be one of the most challenging tasks anyone can undertake. As we all know too well, living with a chronic condition such as pulmonary hypertension (PH) can be overwhelming at times as well. Combine the two, and it can be a recipe for disaster. But with a positive attitude, support system, game plan, and a little flexibility, it's possible to not only survive these trying years of parenting with PH – but to thrive! Listen to this webinar to learn tips and tricks for easier healthy parenting from fellow parents with PH. PH patients, Julia Feitner, Nicole Stafford and Holly Thompson, led this discussion and answered any questions participants had on the topic.

  • Family Planning with PH: Pregnancy Risks and Adoption as an Alternate Option

    November 12, 2014

    When a woman in her childbearing years receives a diagnosis of pulmonary hypertension (PH), she also receives the difficult news that pregnancy in the setting of PH is dangerous and not recommended. Yet, many women may still like to have a family someday. In this webinar, Dr. Meredith Pugh of Vanderbilt University Medical Center and PHA Board member Colleen Brunetti cover various intricacies regarding family planning with PH. Pregnancy complications, contraceptive options, coping with this news and adoption as a possibility for adding to your family are covered in this interactive discussion.

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    Planes, Trains, Boats and Automobiles (2014)

    June 20, 2014

    Whether your travel is for business, pleasure or medical necessity, getting there is as important as what you do after you arrive. Travel with PH can be a challenge, but with planning you don't have to give it up. Tips from this 2014 Conference session will help you minimize the hassles and get the most out of your travel.

  • When Urgent or Emergent Situations Arise: What Should I Do?

    February 18, 2014

    Urgent or emergent situations arise in all of our lives when we least expect them. As pulmonary arterial hypertension (PAH) patients, it is imperative that your PAH provider and team be notified immediately to coordinate your care. In this webinar, Wendy Hill, MSN, RN, NP-C, will assist you in learning how to address these untimely occurrences with your PAH team and in understanding the importance of having and implementing a plan.

  • 9 to 5 with PH

    June 22, 2012

    Find a way to continue working while keeping up your health. Our jobs and careers make up such a large part of our identity that few of us want to give them up – not to mention the need for income and access to health insurance. Hear how other PH patients manage to work. Join this discussion of workplace rights and what you should or shouldn't tell your employer and fellow employees.

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