For Patients


  • Newly-Diagnosed: Beyond Diagnosis: Working and traveling with PH

    September 21, 2017

    Learning to adapt to a new normal can be difficult, but there is life beyond your PH diagnosis. In this patient-led webinar, panelists discuss the challenges of navigating work and travel with PH. Panelists offer insights, tips, and strategies they've learned from personal experience traveling and working after a PH diagnosis. Being able to prepare for interviews, handle work schedules, and arrange for travel are new hurdles for newly diagnosed PH patients. But they can be managed with preparedness skills and the inside scoop!

  • Newly Diagnosed: Beginning the Journey to Your New Normal

    July 31, 2017

    If you’ve recently been diagnosed with PH, you have likely been thrusted into a new world filled with clinical tests, medical jargon, low sodium diets, oxygen equipment and other various medications. This can be overwhelming, to say the least. In this patient-led webinar, panelists gave insight into personal experiences and the tools that they have used when they first began their journey into discovering their “new normal.” Through a discussion of strategies on how to prepare for your doctor visits, work with your health care team and communicate with your friends and family about PH, we hope that viewers leave with a renewed sense of hope and empowerment.

  • Changing Treatments

    March 2, 2017

    Changes in therapy are usually considered when therapeutic goals are not reached or when medications are causing difficult side effects. We will discuss the monitoring that is often required before and after changes are made.

  • Finding and Living Your New Normal

    March 12, 2015

    This webinar is especially designed for newly diagnosed pulmonary hypertension (PH) patients. Natalie Kitterman, BSN, RN, CCRP, reviews the basics of what every PH patient should know about treatment and coping with this disease. The presentation answers common questions newly diagnosed patients may have such as, “Why am I different?,” “Where do I go from here?,” “How do I help myself and my loved ones?,” and more. The end of the hour features an open Question and Answer session.

  • Living without Fear: The Role of Patient Education in the Care of PH

    January 30, 2015

    This webinar reviews the key points presented in the Newly Diagnosed Self-Study: PH Ready and Newly Diagnosed Self-Study: PH Ready Caregivers curricula. Dr. Vinicio de Jesus Perez of Stanford University discusses several resources available to help patients and caregivers deal with PH in the long term, and offers tips on how to better cope with and manage PH. Whether you participated in the PH Ready curriculums or not, we invite you to listen to discussion of value to anyone living with PH!

  • Newly Diagnosed? What You Need to Know (July 2013)

    July 30, 2013

    If you or someone you know was recently diagnosed with pulmonary hypertension, please join us for a webinar especially designed for newly diagnosed patients. Jean Elwing, MD will review the basics of what every pulmonary hypertension patient should know about PH, its treatment and coping with this disease.

  • After the Diagnosis: Courage to Take the Next Step

    February 25, 2013

    Coping with a new pulmonary hypertension diagnosis may be challenging, but there are things you can do to help you feel your best. In this webinar Janet Pinson, NP, will discuss tips for communicating effectively with your family and friends about your PH and ways to maintain good emotional health.

  • Life After Diagnosis: Staying Active with PH

    February 16, 2012

    After diagnosis, many patients experience difficulties adjusting to a changing lifestyle. Despite these challenges, patients can find ways to stay active, whether that be through exercising, advocacy or being with friends and family. During this webinar, hear from medical professionals and patients about the different ways you can stay active with PH and how to maintain energy to continue doing the things you love.

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