New Releases

  • My Life With PH and Advice To Others Newly Diagnosed

    April 27, 2018

  • Newly-Diagnosed: Beyond Diagnosis: Working and traveling with PH

    September 21, 2017

    Learning to adapt to a new normal can be difficult, but there is life beyond your PH diagnosis. In this patient-led webinar, panelists discuss the challenges of navigating work and travel with PH. Panelists offer insights, tips, and strategies they've learned from personal experience traveling and working after a PH diagnosis. Being able to prepare for interviews, handle work schedules, and arrange for travel are new hurdles for newly diagnosed PH patients. But they can be managed with preparedness skills and the inside scoop!

  • Newly Diagnosed: Looking forward and diving in: Registries, trials and treatments

    August 31, 2017

    In the last webinar of the Newly Diagnosed series, Dr. Wassim Fares of Yale University School of Medicine discusses the benefits to participating in registries and what they tell doctors and researchers about PH. Discussion will also talk through the ins and outs of clinical trials, such as what being in a placebo group involves, general stages of a clinical trial and the types of clinical trials available. Dr. Fares talks about what these trials suggest for future treatments in PH.

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