Newly-Diagnosed: Beyond Diagnosis: Working and traveling with PH
Learning to adapt to a new normal can be difficult, but there is life beyond your PH diagnosis. In this patient-led webinar, panelists discuss the challenges of navigating work and travel with PH. Panelists offer insights, tips, and strategies they've learned from personal experience traveling and working after a PH diagnosis. Being able to prepare for interviews, handle work schedules, and arrange for travel are new hurdles for newly diagnosed PH patients. But they can be managed with preparedness skills and the inside scoop!
Newly Diagnosed: Looking forward and diving in: Registries, trials and treatments
In the last webinar of the Newly Diagnosed series, Dr. Wassim Fares of Yale University School of Medicine discusses the benefits to participating in registries and what they tell doctors and researchers about PH. Discussion will also talk through the ins and outs of clinical trials, such as what being in a placebo group involves, general stages of a clinical trial and the types of clinical trials available. Dr. Fares talks about what these trials suggest for future treatments in PH.
Exercising with PH: The Ins, Outs, Ups and Downs
Starting an exercise program with a diagnosis of PH can often be a scary thought. Exercise is a great way to improve breathing efficiency, aerobic capacity, and overall quality of life. These factors play a major role in improving symptoms that are associated with PH. During this webinar, senior exercise physiologists: Julie Tracy, MSc and Abbey Karin, M.Ed. of Brigham and Women’s Hospital discussed the benefits of exercise, risks and warning signs to be aware of when exercising, and daily exercises that can increase your fitness and strength.
Men with PH: Specific Issues for Men Diagnosed with PH
During this webinar, Mr. Voner presented a patient story to highlight the unique ways men can experience diagnosis and living with PH. Audience members will learn how PH and the different treatment options can affect them physically and will also come away with a better understanding of how PH may impact others facets of their lives. Finally, strategies will be presented to help men with PH learn to adapt to these physical, mental and social challenges.
Women with PH: Intimacy
During this webinar, Amy Kimber, RN, APNP, from Froedtert and the Medical College of Wisconsin and Dr. Ioana Preston from Tufts University School of Medicine addressed ways that a pulmonary hypertension (PH) diagnosis can affect a woman’s personal life, identity relationships with others and how they can navigate these changes. Everyone experiences uncertainty and changes with their body image as well as emotional and sexual relationships. Adding a chronic medical illness can be challenging, so women should know that they can take control and be empowered in their lives. Discussion covered how you can better recognize thoughts and feelings about these changes and how to become comfortable in your skin with PH.
Newly Diagnosed: Tests, Tests, and More Tests: What is PH Diagnostic Testing Telling my Doctors?
All the testing that goes into a correct PH diagnosis can be overwhelming! This webinar reviewed and dissected many of the clinical tests that are used in the diagnosis of pulmonary hypertension, including: echocardiogram, right heart cardiac catheterization, pulmonary function testing, sleep studies, and other laboratory tests. The session also discussed the risks and benefits of the testing, as well as how all the information is used to unravel different diagnoses of pulmonary hypertension.
Newly Diagnosed: Beginning the Journey to Your New Normal
If you’ve recently been diagnosed with PH, you have likely been thrusted into a new world filled with clinical tests, medical jargon, low sodium diets, oxygen equipment and other various medications. This can be overwhelming, to say the least. In this patient-led webinar, panelists gave insight into personal experiences and the tools that they have used when they first began their journey into discovering their “new normal.” Through a discussion of strategies on how to prepare for your doctor visits, work with your health care team and communicate with your friends and family about PH, we hope that viewers leave with a renewed sense of hope and empowerment.