Living with PH

e-Learning Guides

  • Back to School Thumb

    e-Learning Guide: Back to School

    December 1, 2014

    As kids and parents consider new teachers, school nurses, physical education classes and 504 plans, the Pulmonary Hypertension Association (PHA) offers important back-to-school tips for navigating this transition.

  • e-Learning Guide - Nutrition & Exercise with PH

    December 1, 2014

    We all want to get moving and eat healthy, but where to start? This e-learning guide provides all the how-to information for getting in shape with pulmonary hypertension (PH).

  • e-Learning Guide - Creative Expression

    December 1, 2014

    Medical research shows that creative outlets – whether they be through writing, painting, photography, or other activities – can lead to improved physical, mental and emotional health. Many patients utilize self-expression as a helpful way to cope with pulmonary hypertension (PH). These resources can help guide you towards your own form of creative expression.

  • e-Learning Guide - Climate and PH

    December 1, 2014

    As a pulmonary hypertension (PH) patient, whether you're living in extreme hot, cold or ever-changing climates, it is important to understand how your environment can affect your symptoms. As a PH patient, whether you're living in extreme hot, cold or ever-changing climates, it is important to understand how your environment can affect your symptoms. This e-Learning Guide provides helpful information, tips and tricks to help PH patients be prepared for any weather type.

  • e-Learning Guide - Emotional Well-Being Through the Holidays

    December 1, 2014

    The weather's cooling down, and the holidays are on everyone's mind. This e-Learning Guide provides tips and resources for ensuring emotional well-being with pulmonary hypertension (PH) throughout the holidays.

  • e-Learning Guide - Parenting a Child with PH

    December 1, 2014

    Having a child with pulmonary hypertension (PH) presents some unique challenges. This e-learning guide is filled with helpful information and resources to ensure that your child receives the best care possible.

  • e-Learning Guide - Relationships with PH

    December 1, 2014

    Although your relationships may change, a diagnosis of pulmonary hypertension (PH) does not mean that your relationships have to end. This e-learning guide holds helpful information on navigating all of your relationships as a PH patient.

  • e-Learning Guide - Self-Empowerment in the New Year

    December 1, 2014

    Make this the year to stick with your resolutions. Learn about Pulmonary Hypertension Association (PHA) resources that can help you empower yourself and make a commitment to a healthier you this year!

  • e-Learning Guide - Traveling with PH

    December 1, 2014

    This e-learning guide provides tips and resources for ensuring safe and happy travel with pulmonary hypertension (PH).

  • workingwithph

    e-Learning Guide - Working with PH

    November 1, 2014

    Working with PH may at first seem like a challenge, but it is possible! This guide provides tips to help balance working while taking care of your PH.

Recordings

  • shenkman

    Financial and Estate Planning with PH

    February 15, 2016

    In this webinar, presenter Martin M. Shenkman, CPA, MBA, PFS, AEP (distinguished), JD, will cover financial and estate planning considerations for PH patients and caregivers. Martin will discuss his 12 steps to guide you towards the goal of legal and financial security. Focus will be placed on steps to maintain financial wellness for one’s self and family in the face of medical illness.

  • Living Well with Lung Disease

    January 20, 2016

    A PH diagnosis affects patients as well as their family members and those around them. Join PHA Classroom and Kristen Holm, PhD, for a discussion of the ways that lung disease affects patients and families. Coping skills, social support and emotional well-being for all affected by PH will be discussed.

  • CTEPH slide

    Living Your Best Life with CTEPH: Life After Diagnosis

    November 17, 2015

    A diagnosis of chronic thromboembolic pulmonary hypertension (CTEPH) comes with a host of questions, many of which are hard to get answers to: Do I need to see a PH specialist? What if I’m not a surgical candidate? What lifestyle changes can I make to help manage my symptoms? Search no more! Drs. Victor Test and William Auger along with Daniela Brady are here to help you life your best life with CTEPH.

  • Personal Foundation and You: Learning to Invest in Your Life and Self-Care

    July 29, 2015

    Elisa Lipnick, a professional life coach and lupus associated-PAH patient, discusses the role of establishing a strong personal foundation for yourself. Elisa shares several tips and tools to build your personal foundation, and explains how doing so can help anyone living with PH.

  • Applying for Disability: The When, Why and How

    June 17, 2015

    Having increasing difficulty keeping up with job demands? Already forced to quit work because of your illness? Consider applying for Social Security Administration (SSA) disability benefits. Not sure where to start? In this webinar recording, Caring Voice Coalition (CVC) Senior Patient Advocate, Lauren Patrizio, discusses how to best prepare (financially, emotionally, and medically) for filing, what to expect from the application process and how CVC can help.

  • PH Patients Should Always Be Prepared – Considerations for Travel and Emergent Situations

    May 14, 2015

    This webinar will empower PH patients and caregivers with practical skills necessary for successful travel (regional; national and international). Conversation covers preparing for travel and emergent situations with oxygen, infusion pumps, and loss of medications. Webinar participants will be able to develop a personal medical emergency plan and gain an understanding of patient/caregiver preparation responsibilities as well as their healthcare team’s role.

  • Parenting with PH

    February 10, 2015

    Under the best circumstances, parenting can be one of the most challenging tasks anyone can undertake. As we all know too well, living with a chronic condition such as pulmonary hypertension (PH) can be overwhelming at times as well. Combine the two, and it can be a recipe for disaster. But with a positive attitude, support system, game plan, and a little flexibility, it's possible to not only survive these trying years of parenting with PH – but to thrive! Listen to this webinar to learn tips and tricks for easier healthy parenting from fellow parents with PH. PH patients, Julia Feitner, Nicole Stafford and Holly Thompson, led this discussion and answered any questions participants had on the topic.

  • Family Planning with PH: Pregnancy Risks and Adoption as an Alternate Option

    November 12, 2014

    When a woman in her childbearing years receives a diagnosis of pulmonary hypertension (PH), she also receives the difficult news that pregnancy in the setting of PH is dangerous and not recommended. Yet, many women may still like to have a family someday. In this webinar, Dr. Meredith Pugh of Vanderbilt University Medical Center and PHA Board member Colleen Brunetti cover various intricacies regarding family planning with PH. Pregnancy complications, contraceptive options, coping with this news and adoption as a possibility for adding to your family are covered in this interactive discussion.

  • Psychosocial Support for PH Kids and Teens

    Psychosocial Support for PH Kids and Teens

    October 2, 2014

    Dr. Holly Gooding of Boston Children's Hospital addresses questions in this webinar for parents of pediatric pulmonary hypertension (PH) patients.

  • Exercising Mindfully with PH

    August 28, 2014

    Dr. Rana Lee Adawi Awdish offers a yoga exercise program specifically designed for pulmonary hypertension (PH) patients in this webinar recording.

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