Living with PH

Videos

  • Holiday Strategies: Pumpkin spice, everything nice and low sodium

    February 22, 2018

    In this holiday special, Katherine Beich, M.S., R.D., Baylor University Medical Center, discusses healthy sodium guidelines and strategies. By walking through a few low sodium recipes, we explore sodium management and portion control guidelines to keep in mind when making choices throughout the holidays. The webinar also discusses potluck and party strategies to maintaining a balanced sodium intake.

  • Embracing holistic care: Supportive care and symptom management

    February 22, 2018

    Managing appointments and medications for PH can be strenuous and complicated for both the patient and their care team. Coordination of care, time restraints and not knowing how to best communicate concerns can make it difficult for patients to express their concerns and ask for support with emotional distress and/or symptom management. In this webinar, Jacob Strand, M.D., Mayo Clinic, defines and discusses supportive care, the myths and misconceptions of palliative care and delve into how this care can benefit PH patients, their caregivers and the PH care team.

  • Men with PH: Specific Issues for Men Diagnosed with PH

    July 31, 2017

    During this webinar, Mr. Voner presented a patient story to highlight the unique ways men can experience diagnosis and living with PH. Audience members will learn how PH and the different treatment options can affect them physically and will also come away with a better understanding of how PH may impact others facets of their lives. Finally, strategies will be presented to help men with PH learn to adapt to these physical, mental and social challenges.

  • Women with PH: Intimacy

    July 31, 2017

    During this webinar, Amy Kimber, RN, APNP, from Froedtert and the Medical College of Wisconsin and Dr. Ioana Preston from Tufts University School of Medicine addressed ways that a pulmonary hypertension (PH) diagnosis can affect a woman’s personal life, identity relationships with others and how they can navigate these changes. Everyone experiences uncertainty and changes with their body image as well as emotional and sexual relationships. Adding a chronic medical illness can be challenging, so women should know that they can take control and be empowered in their lives. Discussion covered how you can better recognize thoughts and feelings about these changes and how to become comfortable in your skin with PH.

  • Exercising with PH: The Ins, Outs, Ups and Downs

    July 31, 2017

    Starting an exercise program with a diagnosis of PH can often be a scary thought. Exercise is a great way to improve breathing efficiency, aerobic capacity, and overall quality of life. These factors play a major role in improving symptoms that are associated with PH. During this webinar, senior exercise physiologists: Julie Tracy, MSc and Abbey Karin, M.Ed. of Brigham and Women’s Hospital discussed the benefits of exercise, risks and warning signs to be aware of when exercising, and daily exercises that can increase your fitness and strength.

  • Women's Reproductive Health and PH

    April 6, 2017

    The goal of this session is to discuss the importance of reproductive health issues in PH, including recommendations for pregnancy prevention, routine well-woman exams, gynecological procedures, etc. This session will also share information about various methods of birth control that are available to women with PH.

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