Living with PH

e-Learning Guides

  • Back to School Thumb

    e-Learning Guide: Back to School

    December 1, 2014

    As kids and parents consider new teachers, school nurses, physical education classes and 504 plans, the Pulmonary Hypertension Association (PHA) offers important back-to-school tips for navigating this transition.

  • e-Learning Guide - Nutrition & Exercise with PH

    December 1, 2014

    We all want to get moving and eat healthy, but where to start? This e-learning guide provides all the how-to information for getting in shape with pulmonary hypertension (PH).

  • e-Learning Guide - Creative Expression

    December 1, 2014

    Medical research shows that creative outlets – whether they be through writing, painting, photography, or other activities – can lead to improved physical, mental and emotional health. Many patients utilize self-expression as a helpful way to cope with pulmonary hypertension (PH). These resources can help guide you towards your own form of creative expression.

  • e-Learning Guide - Climate and PH

    December 1, 2014

    As a pulmonary hypertension (PH) patient, whether you're living in extreme hot, cold or ever-changing climates, it is important to understand how your environment can affect your symptoms. As a PH patient, whether you're living in extreme hot, cold or ever-changing climates, it is important to understand how your environment can affect your symptoms. This e-Learning Guide provides helpful information, tips and tricks to help PH patients be prepared for any weather type.

  • e-Learning Guide - Emotional Well-Being Through the Holidays

    December 1, 2014

    The weather's cooling down, and the holidays are on everyone's mind. This e-Learning Guide provides tips and resources for ensuring emotional well-being with pulmonary hypertension (PH) throughout the holidays.

  • e-Learning Guide - Parenting a Child with PH

    December 1, 2014

    Having a child with pulmonary hypertension (PH) presents some unique challenges. This e-learning guide is filled with helpful information and resources to ensure that your child receives the best care possible.

  • e-Learning Guide - Relationships with PH

    December 1, 2014

    Although your relationships may change, a diagnosis of pulmonary hypertension (PH) does not mean that your relationships have to end. This e-learning guide holds helpful information on navigating all of your relationships as a PH patient.

  • e-Learning Guide - Self-Empowerment in the New Year

    December 1, 2014

    Make this the year to stick with your resolutions. Learn about Pulmonary Hypertension Association (PHA) resources that can help you empower yourself and make a commitment to a healthier you this year!

  • e-Learning Guide - Traveling with PH

    December 1, 2014

    This e-learning guide provides tips and resources for ensuring safe and happy travel with pulmonary hypertension (PH).

  • workingwithph

    e-Learning Guide - Working with PH

    November 1, 2014

    Working with PH may at first seem like a challenge, but it is possible! This guide provides tips to help balance working while taking care of your PH.

Recordings

  • Coping with Chronic Illness

    April 6, 2017

    Caregivers and patients may experience difficulty coping, compassion fatigue, burnout and survivor's guilt. Long term exposure to the challenges and stress of providing care and/or living with a chronic illness can lead to physical and emotional symptoms. Strategies to identify and address these issues will be discussed.

  • Nutrition and Diuretics

    April 6, 2017

    Panelists will discuss how a patient's diet can improve living with PH. Viewers will learn hot to optimize the body's water balance with good salt and water habits, learn the importance of maintaining a proper diet and healthy weight, and learn tricks to better deal with the side effects of water pills.

  • Men with PH

    April 6, 2017

    During this session, panelists will facilitate a discussion about the ways that men experience living with PH, and the ways that PH can impact one's personal life.

  • Coping with PH and the Role of Palliative Care

    April 6, 2017

    Day-to-day life with chronic disease is a challenge to patients, caregivers and their families. The goal of this session is to provide tools for coping with the "good days" as well as the "bad days," and provide some new options for improving quality of life.

  • Women's Reproductive Health and PH

    April 6, 2017

    The goal of this session is to discuss the importance of reproductive health issues in PH, including recommendations for pregnancy prevention, routine well-woman exams, gynecological procedures, etc. This session will also share information about various methods of birth control that are available to women with PH.

  • Surgery and Anesthesia in PH Patients

    March 2, 2017

    The purpose of this session will be to review the potential risks of anesthesia and surgical procedures in patients with pulmonary hypertension.

  • PH Associated with Another Condition- Coping with a Second Illness

    January 20, 2017

    As treatments for PH allow patients to enjoy a longer life, patients with PH are then susceptible to the problems of 'regular' people as they age. Explore problems like diabetes, chronic kidney disease, and coronary artery disease as panelists answer questions from the audience.

  • shenkman

    Financial and Estate Planning with PH

    February 15, 2016

    In this webinar, presenter Martin M. Shenkman, CPA, MBA, PFS, AEP (distinguished), JD, will cover financial and estate planning considerations for PH patients and caregivers. Martin will discuss his 12 steps to guide you towards the goal of legal and financial security. Focus will be placed on steps to maintain financial wellness for one’s self and family in the face of medical illness.

  • Living Well with Lung Disease

    January 20, 2016

    A PH diagnosis affects patients as well as their family members and those around them. Join PHA Classroom and Kristen Holm, PhD, for a discussion of the ways that lung disease affects patients and families. Coping skills, social support and emotional well-being for all affected by PH will be discussed.

  • CTEPH slide

    Living Your Best Life with CTEPH: Life After Diagnosis

    November 17, 2015

    A diagnosis of chronic thromboembolic pulmonary hypertension (CTEPH) comes with a host of questions, many of which are hard to get answers to: Do I need to see a PH specialist? What if I’m not a surgical candidate? What lifestyle changes can I make to help manage my symptoms? Search no more! Drs. Victor Test and William Auger along with Daniela Brady are here to help you life your best life with CTEPH.

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