Newly Diagnosed

Videos

  • Newly-Diagnosed: Beyond Diagnosis: Working and traveling with PH

    September 21, 2017

    Learning to adapt to a new normal can be difficult, but there is life beyond your PH diagnosis. In this patient-led webinar, panelists discuss the challenges of navigating work and travel with PH. Panelists offer insights, tips, and strategies they've learned from personal experience traveling and working after a PH diagnosis. Being able to prepare for interviews, handle work schedules, and arrange for travel are new hurdles for newly diagnosed PH patients. But they can be managed with preparedness skills and the inside scoop!

  • Newly Diagnosed: Looking forward and diving in: Registries, trials and treatments

    August 31, 2017

    In the last webinar of the Newly Diagnosed series, Dr. Wassim Fares of Yale University School of Medicine discusses the benefits to participating in registries and what they tell doctors and researchers about PH. Discussion will also talk through the ins and outs of clinical trials, such as what being in a placebo group involves, general stages of a clinical trial and the types of clinical trials available. Dr. Fares talks about what these trials suggest for future treatments in PH.

  • Newly Diagnosed: Tests, Tests, and More Tests: What is PH Diagnostic Testing Telling my Doctors?

    July 31, 2017

    All the testing that goes into a correct PH diagnosis can be overwhelming! This webinar reviewed and dissected many of the clinical tests that are used in the diagnosis of pulmonary hypertension, including: echocardiogram, right heart cardiac catheterization, pulmonary function testing, sleep studies, and other laboratory tests. The session also discussed the risks and benefits of the testing, as well as how all the information is used to unravel different diagnoses of pulmonary hypertension.

  • Newly Diagnosed: Beginning the Journey to Your New Normal

    July 31, 2017

    If you’ve recently been diagnosed with PH, you have likely been thrusted into a new world filled with clinical tests, medical jargon, low sodium diets, oxygen equipment and other various medications. This can be overwhelming, to say the least. In this patient-led webinar, panelists gave insight into personal experiences and the tools that they have used when they first began their journey into discovering their “new normal.” Through a discussion of strategies on how to prepare for your doctor visits, work with your health care team and communicate with your friends and family about PH, we hope that viewers leave with a renewed sense of hope and empowerment.

  • Finding and Living Your New Normal

    March 12, 2015

    This webinar is especially designed for newly diagnosed pulmonary hypertension (PH) patients. Natalie Kitterman, BSN, RN, CCRP, reviews the basics of what every PH patient should know about treatment and coping with this disease. The presentation answers common questions newly diagnosed patients may have such as, “Why am I different?,” “Where do I go from here?,” “How do I help myself and my loved ones?,” and more. The end of the hour features an open Question and Answer session.

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