Newly Diagnosed

Videos

  • Newly-Diagnosed: Beyond Diagnosis: Working and traveling with PH

    September 21, 2017

    Learning to adapt to a new normal can be difficult, but there is life beyond your PH diagnosis. In this patient-led webinar, panelists discuss the challenges of navigating work and travel with PH. Panelists offer insights, tips, and strategies they've learned from personal experience traveling and working after a PH diagnosis. Being able to prepare for interviews, handle work schedules, and arrange for travel are new hurdles for newly diagnosed PH patients. But they can be managed with preparedness skills and the inside scoop!

  • Newly Diagnosed: Beginning the Journey to Your New Normal

    July 31, 2017

    If you’ve recently been diagnosed with PH, you have likely been thrusted into a new world filled with clinical tests, medical jargon, low sodium diets, oxygen equipment and other various medications. This can be overwhelming, to say the least. In this patient-led webinar, panelists gave insight into personal experiences and the tools that they have used when they first began their journey into discovering their “new normal.” Through a discussion of strategies on how to prepare for your doctor visits, work with your health care team and communicate with your friends and family about PH, we hope that viewers leave with a renewed sense of hope and empowerment.

  • Debunking PH Misconceptions ll

    December 19, 2016

    In this session we will discuss and debunk common PH myths, rumors, and misconceptions.

  • Debunking PH Misconceptions l

    December 19, 2016

    Finding accurate medical information is difficult. In this session we will discuss and debunk common PH myths, rumors, and misconceptions.

  • Experienced Insights into Caring for a Child with PH

    March 18, 2015

    Presented by the Nora Thelma Boström Foundation in partnership with PHA, this webinar covers the unique challenges in raising an infant or toddler with pulmonary hypertension. Claire McCormack and Thomas Boström offer detailed advice on a variety of topics, from managing medication to navigating bath time. Anne Davis, RN, of Seattle Children’s Hospital, participates as a medical resource.

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