Coping with PH

Videos

  • Embracing holistic care: Supportive care and symptom management

    February 22, 2018

    Managing appointments and medications for PH can be strenuous and complicated for both the patient and their care team. Coordination of care, time restraints and not knowing how to best communicate concerns can make it difficult for patients to express their concerns and ask for support with emotional distress and/or symptom management. In this webinar, Jacob Strand, M.D., Mayo Clinic, defines and discusses supportive care, the myths and misconceptions of palliative care and delve into how this care can benefit PH patients, their caregivers and the PH care team.

  • Newly Diagnosed: Beginning the Journey to Your New Normal

    July 31, 2017

    If you’ve recently been diagnosed with PH, you have likely been thrusted into a new world filled with clinical tests, medical jargon, low sodium diets, oxygen equipment and other various medications. This can be overwhelming, to say the least. In this patient-led webinar, panelists gave insight into personal experiences and the tools that they have used when they first began their journey into discovering their “new normal.” Through a discussion of strategies on how to prepare for your doctor visits, work with your health care team and communicate with your friends and family about PH, we hope that viewers leave with a renewed sense of hope and empowerment.

  • Coping with Chronic Illness

    April 6, 2017

    Caregivers and patients may experience difficulty coping, compassion fatigue, burnout and survivor's guilt. Long term exposure to the challenges and stress of providing care and/or living with a chronic illness can lead to physical and emotional symptoms. Strategies to identify and address these issues will be discussed.

  • Coping with PH and the Role of Palliative Care

    April 6, 2017

    Day-to-day life with chronic disease is a challenge to patients, caregivers and their families. The goal of this session is to provide tools for coping with the "good days" as well as the "bad days," and provide some new options for improving quality of life.

  • Living Well with Lung Disease

    January 20, 2016

    A PH diagnosis affects patients as well as their family members and those around them. Join PHA Classroom and Kristen Holm, PhD, for a discussion of the ways that lung disease affects patients and families. Coping skills, social support and emotional well-being for all affected by PH will be discussed.

  • Finding and Living Your New Normal

    March 12, 2015

    This webinar is especially designed for newly diagnosed pulmonary hypertension (PH) patients. Natalie Kitterman, BSN, RN, CCRP, reviews the basics of what every PH patient should know about treatment and coping with this disease. The presentation answers common questions newly diagnosed patients may have such as, “Why am I different?,” “Where do I go from here?,” “How do I help myself and my loved ones?,” and more. The end of the hour features an open Question and Answer session.

Thanks to Our Sponsors