Everyday Living

Videos

  • Health care planning: Conversations, decisions and directives

    February 22, 2018

    Learn the essentials of health care planning, advance directives, and the three key questions at the heart of health decisions planning with Charles Sabatino, Director, American Bar Association’s Commission on Law and Aging. Recognize five myths of advance care planning that get in the way and discover the free resources that help you and your family get the process going. Being prepared with needed documents for any health emergency ensures that you will have a trusted person of your choice empowered to make health decisions for you if you are unable. It is not rocket science, but it takes a little initiative, and it is essential for all adults age 18 to 118.

  • Newly Diagnosed: Beyond Diagnosis: Working and traveling with PH

    September 21, 2017

    Learning to adapt to a new normal can be difficult, but there is life beyond your PH diagnosis. In this patient-led webinar, panelists discuss the challenges of navigating work and travel with PH. Panelists offer insights, tips, and strategies they've learned from personal experience traveling and working after a PH diagnosis. Being able to prepare for interviews, handle work schedules, and arrange for travel are new hurdles for newly diagnosed PH patients. But they can be managed with preparedness skills and the inside scoop!

  • Men with PH: Specific Issues for Men Diagnosed with PH

    July 31, 2017

    During this webinar, Mr. Voner presented a patient story to highlight the unique ways men can experience diagnosis and living with PH. Audience members will learn how PH and the different treatment options can affect them physically and will also come away with a better understanding of how PH may impact others facets of their lives. Finally, strategies will be presented to help men with PH learn to adapt to these physical, mental and social challenges.

  • Women with PH: Intimacy

    July 31, 2017

    During this webinar, Amy Kimber, RN, APNP, from Froedtert and the Medical College of Wisconsin and Dr. Ioana Preston from Tufts University School of Medicine addressed ways that a pulmonary hypertension (PH) diagnosis can affect a woman’s personal life, identity relationships with others and how they can navigate these changes. Everyone experiences uncertainty and changes with their body image as well as emotional and sexual relationships. Adding a chronic medical illness can be challenging, so women should know that they can take control and be empowered in their lives. Discussion covered how you can better recognize thoughts and feelings about these changes and how to become comfortable in your skin with PH.

  • Men with PH

    April 6, 2017

    During this session, panelists will facilitate a discussion about the ways that men experience living with PH, and the ways that PH can impact one's personal life.

  • Women's Reproductive Health and PH

    April 6, 2017

    The goal of this session is to discuss the importance of reproductive health issues in PH, including recommendations for pregnancy prevention, routine well-woman exams, gynecological procedures, etc. This session will also share information about various methods of birth control that are available to women with PH.

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